E4: User involvement
Those affected by stroke are meaningfully involved in the planning, development, delivery and monitoring of services.
Key: e = element | k = knowledge | s = skill
Knowledge and understanding of…
e4k_1:
the full range of local and national resources and services available for those affected by stroke, including: health, social, voluntary, and independent; how to facilitate access and length of referral time
e4k_2:
how to assess and overcome physiological, neurological, and psychological challenges
e4k_3:
factors that influence people's ability to be involved in care and service planning, with particular consideration of under-represented groups
e4k_4:
methods that can be used to involve those affected by stroke in service planning
e4k_5:
methods that can be used to capture patient and carer views
e4k_6:
how service planning and decision making processes work and how they can be influenced
e4k_7:
methods for using stakeholder views, including patient, carer, public & clinical, to influence services
e4k_8:
methods of feeding back to stakeholders regarding how their contributions have influenced services
Skills and ability to...
e4s_1:
create an open and honest environment that is not intimidating and offers patients and their carers the opportunity to freely give their views
e4s_2:
identify under-represented groups and ensure that their views are included
e4s_3:
overcome the factors that prevent those affected by stroke from being involved in care and service planning
e4s_4:
ensure sensitive engagement with people who have physiological, neurological, and/or psychological post-stroke challenges
e4s_5:
translate the views of those affected by stroke into service planning, development, delivery, and monitoring
e4s_6:
identify local opportunities and appropriate formats for formal and informal feedback regarding how their contributions have influenced services (e.g. PALS, PPI)
e4s_7:
handle complaints to the satisfaction of all parties
