E4: User involvement

Those affected by stroke are meaningfully involved in the planning, development, delivery and monitoring of services. (Key: e = element | k = knowledge | s = skill)

Knowledge and understanding of…

e4k_1:
The services relevant for stroke patients and carers
e4k_2:
How to assess and overcome barriers to problems: psychological and emotional; social and relationship; cognitive and communication; physical and functional; visual and sensory impairments and pain; medical
e4k_3:
Methods to empower patients; patient advocacy
e4k_4:
Methods that can be used to involve stroke patients and carers in service planning
e4k_5:
Methods that can be used to capture stroke patient and carer views
e4k_6:
Methods for using views to influence services
e4k_7:
Factors that influence people’s ability to be involved in care and service planning
e4k_8:
Methods of feeding back to stroke patients and carers how their contributions have influenced services
e4k_9:
How service planning and decision making processes work and how they can be influenced

Skills and ability to...

e4s_1:
Assess services (health, social, voluntary and independent) available locally for those affected by stroke: identify the full range available; establish relevance; communicate and liaise with services; signpost service
e4s_2:
Create an open and honest environment that is not intimidating and offers stroke patients and their carers the opportunity to freely give their views
e4s_3:
Interact with people who have one or more of the following problems: communication; physical/functional; psychological; social; medical
e4s_4:
Translate the views of those affected by stroke into service planning, development, delivery and monitoring
e4s_5:
Identify hard-to-reach groups and ensure that their views are included
e4s_6:
Overcome the factors that prevent those affected by stroke from being involved in care and service planning
e4s_7:
Identify local opportunities and appropriate formats for formal and informal feedback (e.g. PALS, PPI)
e4s_8:
Handle complaints to the satisfaction of all parties