E11: End-of-life care

People who are not likely to recover from their stroke receive care at the end of their lives, which takes account of their needs and choices.

Key: e = element | k = knowledge | s = skill


Knowledge and understanding of…

e11k_1:
end-of-life care pathways, advanced directives, and palliative care tools in relation to stroke
e11k_2:
the range of support groups and services for those affected by stroke with palliative care needs
e11k_3:
ways to assess and meet the needs and aspirations of those affected by stroke during end-of-life care
e11k_4:
the assessment and management of the physiological, neurological, and psychological effects of stroke at end of life and possible implications for prognosis
e11k_5:
pharmacological and non-pharmacological interventions for end-of-life care after stroke, and their potential adverse effects

Skills and ability to...

e11s_1:
communicate and discuss with the patient, carer, and family: the palliative care options, their timeframes, rationale, and potential adverse effects
e11s_2:
carry out decision-specific capacity assessments and follow "best interests" decision making when appropriate, in accordance with mental capacity law
e11s_3:
provide sufficient information to enable informed choice and decision making by those affected by stroke
e11s_4:
identify need and when to refer for more specialist or differing treatments where necessary, and agree referral
e11s_5:
recognise and manage symptoms taking account of individual needs and aspirations
e11s_6:
use palliative care, or other relevant tools, and care pathways
e11s_7:
identify local services and resources, including waiting times and implications for the provision of end-of-life care
e11s_8:
use strategies to help with breaking bad news, managing emotions, and obtaining information on advanced directives
e11s_9:
develop mechanisms to support the palliative care team and provide opportunities for debriefing sessions