Carer Profile - Stroke-Specific Education Framework

A Carer Role Profile shows the sort of knowledge that those affected by stroke may find useful; it can be used in many ways:

If you have been affected by stroke you may be unsure about the sort of information that you need; the Carer Profile shows you the sort of knowledge that you may find useful;

If we are to provide useful courses for those affected by stroke, we need to know what should be included; the Carer Profile shows what should be included and at what level;

If you wish to attend a course, you may wonder if it will include the information that is relevant to you; the Carer Profile will show you the sort of information you want.

Download the Carer Profile here.
Download the Carer Profile (Accessible version) here.

Profile AverageKnowledgeE1E2E3E4E5E6E7E8E9E10E11E12E13E14E15E16

Elements covered	Knowledge
E1: Awareness raising	0.7
E2: Managing risk	0.6
E3: Information	0.9
E4: User involvement	0.0
E5: Assessment (TIA)	0.0
E6: Treatment (TIA)	0.0
E7: Urgent response	0.0
E8: Assessment (stroke)	0.0
E9: Treatment (stroke)	0.0
E10: Specialist rehabilitation	0.0
E11: End-of-life care	0.9
E12: Seamless transfer of care	0.0
E13: Long-term care	1.2
E14: Review	0.0
E15: Participation in community	0.0
E16: Return to work	0.0

	E1	E2	E3	E4	E5	E6	E7	E8	E9	E10	E11	E12	E13	E14	E15	E16
k_1	1	1	1								2		1
k_2	0	1	0								1		1
k_3	0	0	0								1		1
k_4	2	1	1								2		2
k_5	0	0	0								1		2
k_6	1	0	2								0		0
k_7	0	1	0								0		1
k_8	1		2								0		2
k_9	1		2										1
k_10			1										1
k_11													1
k_12
k_13
k_14
k_15
k_16
k_17
k_18
k_19
k_20
k_21
k_22
k_23
k_24
k_25
k_26
AVE	0.7	0.6	0.9	0.0	0.0	0.0	0.0	0.0	0.0	0.0	0.9	0.0	1.2	0.0	0.0	0.0

	E1	E2	E3	E4	E5	E6	E7	E8
k_1	1	1	1
k_2	0	1	0
k_3	0	0	0
k_4	2	1	1
k_5	0	0	0
k_6	1	0	2
k_7	0	1	0
k_8	1		2
k_9	1		2
k_10			1
k_11
k_12
k_13
k_14
k_15
k_16
k_17
k_18
k_19
k_20
k_21
k_22
k_23
k_24
k_25
k_26
AVE	0.7	0.6	0.9	0.0	0.0	0.0	0.0	0.0

	E10	E11	E12	E13	E14	E15	E16
k_1		2		1
k_2		1		1
k_3		1		1
k_4		2		2
k_5		1		2
k_6		0		0
k_7		0		1
k_8		0		2
k_9				1
k_10				1
k_11				1
k_12
k_13
k_14
k_15
k_16
k_17
k_18
k_19
k_20
k_21
k_22
k_23
k_24
k_25
k_26
AVE	0.0	0.9	0.0	1.2	0.0	0.0	0.0

E1	Awareness raising	Level
	Knowledge and understanding of…
e1k_1	Signs and symptoms of stroke	1
e1k_2	Features of less common (atypical) presentation of stroke	n/a
e1k_3	Stroke mimics and likely presentation	n/a
e1k_4	Stroke and TIA as medical emergencies	2
e1k_5	Emergency response, investigations, interventions and treatments for stroke and TIA	n/a
e1k_6	Timeframe for emergency investigations, interventions and treatments for stroke and TIA	1
e1k_7	Anatomy and physiology of the central nervous system	n/a
e1k_8	Timeframe of physiological and neurological changes during a stroke	1
e1k_9	Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	1

E2	Managing risk	Level
	Knowledge and understanding of…
e2k_1	Risk factors for stroke and TIA (e.g. lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities)	1
e2k_2	Stroke types and their aetiologies	1
e2k_3	Risk of stroke depending on type and aetiology	n/a
e2k_4	Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	1
e2k_5	Who provides interventions for primary and secondary prevention of stroke	n/a
e2k_6	Pharmacological and non-pharmacological interventions for primary and secondary prevention of stroke, and side effects of treatment	n/a
e2k_7	Methods of changing behaviour	1

E3	Information	Level
	Knowledge and understanding of…
e3k_1	Stroke types and their aetiologies	1
e3k_2	Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities)	n/a
e3k_3	Pharmacological and non-pharmacological interventions for primary and secondary prevention of stroke, and side effects of treatment	n/a
e3k_4	Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	1
e3k_5	Who provides interventions for primary and secondary prevention of stroke	n/a
e3k_6	Full range of services (health, social, community, voluntary and independent) available locally for those affected by stroke	2
e3k_7	How to assess and overcome barriers to problems: psychological and emotional; social and relationship; cognitive and communication; physical and functional; visual and sensory impairments and pain; medical	n/a
e3k_8	The impact of stroke on the individual, carer and family	2
e3k_9	The implications of stroke for lifestyle, driving, work and family	2
e3k_10	Methods of changing behaviour	1

E4	User involvement	Level
	Knowledge and understanding of…
e4k_1	The services relevant for stroke patients and carers	n/a
e4k_2	How to assess and overcome barriers to problems: psychological and emotional; social and relationship; cognitive and communication; physical and functional; visual and sensory impairments and pain; medical	n/a
e4k_3	Methods to empower patients; patient advocacy	n/a
e4k_4	Methods that can be used to involve stroke patients and carers in service planning	n/a
e4k_5	Methods that can be used to capture stroke patient and carer views	n/a
e4k_6	Methods for using views to influence services	n/a
e4k_7	Factors that influence people’s ability to be involved in care and service planning	n/a
e4k_8	Methods of feeding back to stroke patients and carers how their contributions have influenced services	n/a
e4k_9	How service planning and decision making processes work and how they can be influenced	n/a

E5	Assessment (TIA)	Level
	Knowledge and understanding of…
e5k_1	Anatomy and physiology of the central nervous system	n/a
e5k_2	Risk factors for stroke and TIA (e.g. lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities)	n/a
e5k_3	The signs and symptoms of TIA	n/a
e5k_4	How to distinguish between stroke and TIA	n/a
e5k_5	The future risk of stroke and TIA (e.g. ABCD2 and other risk scoring methods)	n/a
e5k_6	The features of atypical presentation of TIA/stroke and mimics and how to act when they are identified	n/a
e5k_7	Investigations, interventions and treatments for TIA (e.g. imaging, vascular, medical, cardiac, surgical)	n/a
e5k_8	Implications of the Mental Capacity Act and how it applies to TIA	n/a
e5k_9	Advocates for stroke and TIA patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	n/a
e5k_10	The timeframe for emergency and follow-on investigations, interventions and treatments for TIA	n/a
e5k_11	How to initiate emergency and ongoing treatment for TIA and vascular prevention	n/a

E6	Treatment (TIA)	Level
	Knowledge and understanding of…
e6k_1	The signs and symptoms of TIA	n/a
e6k_2	Atypical presentation of TIA and TIA mimics and how to act when they are identified	n/a
e6k_3	How to distinguish between stroke and TIA	n/a
e6k_4	Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities)	n/a
e6k_5	Pharmacological and non-pharmacological interventions, and the level of urgency for risk factor management	n/a
e6k_6	Side effects of pharmacological and non-pharmacological interventions as well as the prevention and management of vascular events	n/a
e6k_7	Late complications of surgical procedures (e.g. stenting, carotid endarterectomy, closure of ASD and PFO) and the implications of the procedures on lifestyle	n/a
e6k_8	Implications of TIA for lifestyle, driving, work and family	n/a
e6k_9	Potential interventions for immediate and ongoing risk factor management	n/a
e6k_10	Methods of changing behaviour	n/a
e6k_11	How QOF and community targets for risk factor management affect prevention strategies	n/a

E7	Urgent response	Level
	Knowledge and understanding of…
e7k_1	Signs and symptoms of stroke	n/a
e7k_2	Features of less common (atypical) presentation of stroke	n/a
e7k_3	Stroke mimics and likely presentation	n/a
e7k_4	Stroke and TIA as medical emergencies	n/a
e7k_5	Emergency response, investigations, interventions and treatments for stroke and TIA	n/a
e7k_6	The timeframe for emergency investigations, interventions and treatments for stroke and TIA	n/a
e7k_7	The anatomy and physiology of the central nervous system	n/a
e7k_8	The physiological and neurological effects of stroke and their timeframe during and after a stroke	n/a
e7k_9	Monitoring and acting upon physiological and neurological changes during and after a stroke	n/a
e7k_10	How stroke can affect communication	n/a
e7k_11	Implications of the Mental Capacity Act and how it applies to TIA	n/a

E8	Assessment (stroke)	Level
	Knowledge and understanding of…
e8k_1	The signs and symptoms of stroke	n/a
e8k_2	The neurological and physiological effects of stroke and the timeframe of changes during and after a stroke	n/a
e8k_3	How to monitor, and act upon, neurological and physiological changes during and after a stroke	n/a
e8k_4	Implications of the Mental Capacity Act and how it applies to stroke and TIA	n/a
e8k_5	Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	n/a
e8k_6	Features of atypical presentation of stroke and stroke mimics	n/a
e8k_7	Stroke types and their aetiologies	n/a
e8k_8	Different modalities to facilitate diagnosis and treatment of stroke (e.g. telemedicine)	n/a
e8k_9	Emergency investigations (e.g. imaging of brain, heart and cerebral arteries, blood tests) and interventions for stroke (e.g. intravenous and intra-arterial thrombolysis, vascular surgery, stenting, hemicraniotomy, evacuation of haematoma) and the timeframe within which they should be given	n/a
e8k_10	The indications and contraindications for investigations, interventions and treatments for stroke	n/a
e8k_11	Any complications of investigations, interventions and treatments for stroke and how to prevent and manage them	n/a

E9	Treatment (stroke)	Level
	Knowledge and understanding of…
e9k_1	Signs and symptoms of stroke	n/a
e9k_2	Neurological and physiological effects of stroke, monitoring, and the timeframe of changes, during and after a stroke	n/a
e9k_3	The need for early mobilisation and positioning	n/a
e9k_4	Assessing swallowing and managing of dysphagia	n/a
e9k_5	Alternative methods of feeding, hydration and drug administration for patients with dysphagia	n/a
e9k_6	The interactions between enteral feeds, fluids and drug treatment	n/a
e9k_7	The effects of stopping ongoing drug treatment because of swallowing problems	n/a
e9k_8	Symptoms and effects of malnourishment	n/a
e9k_9	The importance and methods of oral hygiene	n/a
e9k_10	The importance of avoiding catheters, as well as managing retention and promoting continence	n/a
e9k_11	Assessing and managing problems: psychological and emotional; social and relationship; cognitive and communication; physical and functional; sensory impairment and pain; medical	n/a

E10	Specialist rehabilitation	Level
	Knowledge and understanding of…
e10k_1	The impact of stroke on the individual, carer and family	n/a
e10k_2	Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	n/a
e10k_3	The implications of stroke for lifestyle, driving, work, family and acceptance in the community	n/a
e10k_4	MDT assessment: the principles of stroke rehabilitation and rehabilitation referral; therapy techniques and their application	n/a
E10k_5	A range of neurological treatment approaches and their applications	n/a
e10k_6	Psychological and emotional problems after stroke (e.g. depression, emotionalism, anxiety, self esteem, confidence, well-being, challenging behaviour)	n/a
e10k_7	Social and relationship problems after stroke (e.g. sex, lifestyle, work, housing, driving, transport, leisure, financial/ income, work/employment, children, family, support network, carers, respite, pets)	n/a
e10K_8	Cognitive and communication problems after stroke (e.g. spatial awareness (neglect/inattention); visual field deficits; hemianopia; memory; attention; praxis; executive function; aphasia, dysarthria, articulatory dyspraxia)	n/a
e10k_9	Physiological, physical and functional problems after stroke (e.g. rest and sleep; respiratory, mobility; balance; senses; incontinence; bladder and bowel management; swallowing; feeding, nutrition and hydration; skin integrity; sexual; motor control; ADL)	n/a
e10k_10	Neurological, visual and sensory impairments and pain problems (e.g. shoulder pain, central post-stroke pain, spasticity, seizures)	n/a
e10k_11	Medical problems (e.g. medication, comorbidities, complications)	n/a

E11	End-of-life care	Level
	Knowledge and understanding of…
e11k_1	End-of-life care strategies, advanced directives, and palliative care tools in relation to stroke	2
e11k_2	The implications of the Mental Capacity Act for stroke patients	1
e11k_3	Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	1
e11k_4	The range of support groups and services for those affected by stroke with palliative care needs	2
e11k_5	The needs and aspirations of those affected by stroke (i.e. patient, carer and family)	1
e11k_6	The assessment and management of problems, how they can be controlled and the implications for prognosis: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical	n/a
e11k_7	Pharmacological and non-pharmacological interventions for end-of-life care after stroke	n/a
e11k_8	The side effects of pharmacological and non-pharmacological interventions for end-of-life care after stroke	n/a

E12	Seamless transfer of care	Level
	Knowledge and understanding of…
e12k_1	The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical; and how to involve users and carers	n/a
e12k_2	Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	n/a
e12k_3	The implications of stroke for lifestyle, driving, work and family	n/a
e12k_4	Methods to facilitate communication with those affected by stroke	n/a
e12k_5	Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport) including exit strategies	n/a
e12k_6	The principles of good planning for transition between services or cessation of services and for transfer of care to the community, including the education of those affected by stroke	n/a
e12k_7	All agencies that are potentially involved along the whole of the Stroke Pathway	n/a
e12k_8	The principles of multi-agency working	n/a

E13	Long-term care	Level
	Knowledge and understanding of…
e13k_1	The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical	1
e13k_2	Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	1
e13k_3	The needs and aspirations of those affected by stroke, particularly those related to the problems listed above, and how these needs and aspirations can be met	1
e13k_4	The impact of stroke on the individual, carer and family	2
e13k_5	The implications of stroke for lifestyle, driving, work and family	2
e13k_6	Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities)	n/a
e13k_7	Pharmacological and non-pharmacological interventions for secondary prevention and to facilitate recovery after stroke and their side effects	1
e13k_8	Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self-management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport)	2
e13k_9	Assistive technology and other therapy interventions (e.g. functional electrical stimulation, orthotics)	1
e13k_10	Methods to facilitate communication with those affected by stroke	1
e13k_11	Concordance: how to assess; how it is affected by individual preference; how to motivate; how to manage non-concordance	1

E14	Review	Level
	Knowledge and understanding of…
e14k_1	The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical	n/a
e14k_2	Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	n/a
e14k_3	The needs and aspirations of those affected by stroke, particularly those related to the problems listed above, and how these needs and aspirations can be met	n/a
e14k_4	Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self-management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport)	n/a
e14k_5	The impact of stroke on the individual, carer and family	n/a
e14k_6	The implications of stroke for lifestyle, driving, work and family	n/a
e14k_7	Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities)	n/a
e14k_8	Pharmacological and non-pharmacological interventions for secondary prevention and how to help recovery after stroke	n/a
e14k_9	Side effects of risk factor interventions and treatments to help with recovery after stroke	n/a
e14k_10	Methods to help communication with those affected by stroke when conducting a review	n/a
e14k_11	Concordance: how to assess; how it is affected by individual preference; how to motivate; how to manage non-concordance	n/a

E15	Participation in community	Level
	Knowledge and understanding of…
e15k_1	The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical	n/a
e15k_2	Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations	n/a
e15k_3	The needs and aspirations of those affected by stroke, particularly those related to the problems listed above, and how these needs and aspirations can be met	n/a
e15k_4	Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self-management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport)	n/a
e15k_5	The impact of stroke on the individual, carer and family	n/a
e15k_6	The implications of stroke for lifestyle; driving; work, including voluntary and family	n/a
e15k_7	Methods to help communication with those affected by stroke, including when conducting a review	n/a

E16	Return to work	Level
	Knowledge and understanding of…
e16k_1	The effects of stroke (cognitive, physical, sensory, visual, emotional, confidence) and how it may affect a return to work and/or education
e16k_2	Assessing the effects of stroke (cognitive, physical, sensory, visual, emotional, confidence)	n/a
e16k_3	Employment law, the Disability Discrimination Act, health and safety at work	n/a
e16k_4	The roles of healthcare and other professionals in employment-related services (occupational health, occupational psychologist, disability employment adviser)	n/a
e16k_5	The occupational therapist’s role in vocational rehabilitation	n/a
e16k_6	Jobcentre Plus, its services and its effectiveness for stroke	n/a
e16k_7	What is meant by “reasonable adjustment” in the workplace, how to adapt or instigate adaptation to the work environment and the employer’s responsibility	n/a
e16k_8	Available helpful technology for overcoming functional and activity limitations in the workplace	n/a
e16k_9	Ergonomic principles and how to overcome access issues	n/a
e16k_10	Return to work education	n/a
e16k_11	Health, work and well-being – the role of purposeful occupation and the detrimental effects of worklessness	n/a