A Carer Role Profile shows the sort of knowledge that those affected by stroke may find useful; it can be used in many ways:
- If you have been affected by stroke you may be unsure about the sort of information that you need; the Carer Profile shows you the sort of knowledge that you may find useful;
- If we are to provide useful courses for those affected by stroke, we need to know what should be included; the Carer Profile shows what should be included and at what level;
- If you wish to attend a course, you may wonder if it will include the information that is relevant to you; the Carer Profile will show you the sort of information you want.
Download the Carer Profile here.
Download the Carer Profile (Accessible version) here.
Profile AverageKnowledgeE1E2E3E4E5E6E7E8E9E10E11E12E13E14E15E16
| Elements covered | Knowledge |
|---|---|
| E1: Awareness raising | 0.7 |
| E2: Managing risk | 0.6 |
| E3: Information | 0.9 |
| E4: User involvement | 0.0 |
| E5: Assessment (TIA) | 0.0 |
| E6: Treatment (TIA) | 0.0 |
| E7: Urgent response | 0.0 |
| E8: Assessment (stroke) | 0.0 |
| E9: Treatment (stroke) | 0.0 |
| E10: Specialist rehabilitation | 0.0 |
| E11: End-of-life care | 0.9 |
| E12: Seamless transfer of care | 0.0 |
| E13: Long-term care | 1.2 |
| E14: Review | 0.0 |
| E15: Participation in community | 0.0 |
| E16: Return to work | 0.0 |
| E1 | Awareness raising | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e1k_1 | Signs and symptoms of stroke | 1 |
| e1k_2 | Features of less common (atypical) presentation of stroke | n/a |
| e1k_3 | Stroke mimics and likely presentation | n/a |
| e1k_4 | Stroke and TIA as medical emergencies | 2 |
| e1k_5 | Emergency response, investigations, interventions and treatments for stroke and TIA | n/a |
| e1k_6 | Timeframe for emergency investigations, interventions and treatments for stroke and TIA | 1 |
| e1k_7 | Anatomy and physiology of the central nervous system | n/a |
| e1k_8 | Timeframe of physiological and neurological changes during a stroke | 1 |
| e1k_9 | Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | 1 |
| E2 | Managing risk | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e2k_1 | Risk factors for stroke and TIA (e.g. lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities) | 1 |
| e2k_2 | Stroke types and their aetiologies | 1 |
| e2k_3 | Risk of stroke depending on type and aetiology | n/a |
| e2k_4 | Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | 1 |
| e2k_5 | Who provides interventions for primary and secondary prevention of stroke | n/a |
| e2k_6 | Pharmacological and non-pharmacological interventions for primary and secondary prevention of stroke, and side effects of treatment | n/a |
| e2k_7 | Methods of changing behaviour | 1 |
| E3 | Information | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e3k_1 | Stroke types and their aetiologies | 1 |
| e3k_2 | Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities) | n/a |
| e3k_3 | Pharmacological and non-pharmacological interventions for primary and secondary prevention of stroke, and side effects of treatment | n/a |
| e3k_4 | Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | 1 |
| e3k_5 | Who provides interventions for primary and secondary prevention of stroke | n/a |
| e3k_6 | Full range of services (health, social, community, voluntary and independent) available locally for those affected by stroke | 2 |
| e3k_7 | How to assess and overcome barriers to problems: psychological and emotional; social and relationship; cognitive and communication; physical and functional; visual and sensory impairments and pain; medical | n/a |
| e3k_8 | The impact of stroke on the individual, carer and family | 2 |
| e3k_9 | The implications of stroke for lifestyle, driving, work and family | 2 |
| e3k_10 | Methods of changing behaviour | 1 |
| E4 | User involvement | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e4k_1 | The services relevant for stroke patients and carers | n/a |
| e4k_2 | How to assess and overcome barriers to problems: psychological and emotional; social and relationship; cognitive and communication; physical and functional; visual and sensory impairments and pain; medical | n/a |
| e4k_3 | Methods to empower patients; patient advocacy | n/a |
| e4k_4 | Methods that can be used to involve stroke patients and carers in service planning | n/a |
| e4k_5 | Methods that can be used to capture stroke patient and carer views | n/a |
| e4k_6 | Methods for using views to influence services | n/a |
| e4k_7 | Factors that influence people’s ability to be involved in care and service planning | n/a |
| e4k_8 | Methods of feeding back to stroke patients and carers how their contributions have influenced services | n/a |
| e4k_9 | How service planning and decision making processes work and how they can be influenced | n/a |
| E5 | Assessment (TIA) | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e5k_1 | Anatomy and physiology of the central nervous system | n/a |
| e5k_2 | Risk factors for stroke and TIA (e.g. lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities) | n/a |
| e5k_3 | The signs and symptoms of TIA | n/a |
| e5k_4 | How to distinguish between stroke and TIA | n/a |
| e5k_5 | The future risk of stroke and TIA (e.g. ABCD2 and other risk scoring methods) | n/a |
| e5k_6 | The features of atypical presentation of TIA/stroke and mimics and how to act when they are identified | n/a |
| e5k_7 | Investigations, interventions and treatments for TIA (e.g. imaging, vascular, medical, cardiac, surgical) | n/a |
| e5k_8 | Implications of the Mental Capacity Act and how it applies to TIA | n/a |
| e5k_9 | Advocates for stroke and TIA patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | n/a |
| e5k_10 | The timeframe for emergency and follow-on investigations, interventions and treatments for TIA | n/a |
| e5k_11 | How to initiate emergency and ongoing treatment for TIA and vascular prevention | n/a |
| E6 | Treatment (TIA) | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e6k_1 | The signs and symptoms of TIA | n/a |
| e6k_2 | Atypical presentation of TIA and TIA mimics and how to act when they are identified | n/a |
| e6k_3 | How to distinguish between stroke and TIA | n/a |
| e6k_4 | Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities) | n/a |
| e6k_5 | Pharmacological and non-pharmacological interventions, and the level of urgency for risk factor management | n/a |
| e6k_6 | Side effects of pharmacological and non-pharmacological interventions as well as the prevention and management of vascular events | n/a |
| e6k_7 | Late complications of surgical procedures (e.g. stenting, carotid endarterectomy, closure of ASD and PFO) and the implications of the procedures on lifestyle | n/a |
| e6k_8 | Implications of TIA for lifestyle, driving, work and family | n/a |
| e6k_9 | Potential interventions for immediate and ongoing risk factor management | n/a |
| e6k_10 | Methods of changing behaviour | n/a |
| e6k_11 | How QOF and community targets for risk factor management affect prevention strategies | n/a |
| E7 | Urgent response | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e7k_1 | Signs and symptoms of stroke | n/a |
| e7k_2 | Features of less common (atypical) presentation of stroke | n/a |
| e7k_3 | Stroke mimics and likely presentation | n/a |
| e7k_4 | Stroke and TIA as medical emergencies | n/a |
| e7k_5 | Emergency response, investigations, interventions and treatments for stroke and TIA | n/a |
| e7k_6 | The timeframe for emergency investigations, interventions and treatments for stroke and TIA | n/a |
| e7k_7 | The anatomy and physiology of the central nervous system | n/a |
| e7k_8 | The physiological and neurological effects of stroke and their timeframe during and after a stroke | n/a |
| e7k_9 | Monitoring and acting upon physiological and neurological changes during and after a stroke | n/a |
| e7k_10 | How stroke can affect communication | n/a |
| e7k_11 | Implications of the Mental Capacity Act and how it applies to TIA | n/a |
| E8 | Assessment (stroke) | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e8k_1 | The signs and symptoms of stroke | n/a |
| e8k_2 | The neurological and physiological effects of stroke and the timeframe of changes during and after a stroke | n/a |
| e8k_3 | How to monitor, and act upon, neurological and physiological changes during and after a stroke | n/a |
| e8k_4 | Implications of the Mental Capacity Act and how it applies to stroke and TIA | n/a |
| e8k_5 | Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | n/a |
| e8k_6 | Features of atypical presentation of stroke and stroke mimics | n/a |
| e8k_7 | Stroke types and their aetiologies | n/a |
| e8k_8 | Different modalities to facilitate diagnosis and treatment of stroke (e.g. telemedicine) | n/a |
| e8k_9 | Emergency investigations (e.g. imaging of brain, heart and cerebral arteries, blood tests) and interventions for stroke (e.g. intravenous and intra-arterial thrombolysis, vascular surgery, stenting, hemicraniotomy, evacuation of haematoma) and the timeframe within which they should be given | n/a |
| e8k_10 | The indications and contraindications for investigations, interventions and treatments for stroke | n/a |
| e8k_11 | Any complications of investigations, interventions and treatments for stroke and how to prevent and manage them | n/a |
| E9 | Treatment (stroke) | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e9k_1 | Signs and symptoms of stroke | n/a |
| e9k_2 | Neurological and physiological effects of stroke, monitoring, and the timeframe of changes, during and after a stroke | n/a |
| e9k_3 | The need for early mobilisation and positioning | n/a |
| e9k_4 | Assessing swallowing and managing of dysphagia | n/a |
| e9k_5 | Alternative methods of feeding, hydration and drug administration for patients with dysphagia | n/a |
| e9k_6 | The interactions between enteral feeds, fluids and drug treatment | n/a |
| e9k_7 | The effects of stopping ongoing drug treatment because of swallowing problems | n/a |
| e9k_8 | Symptoms and effects of malnourishment | n/a |
| e9k_9 | The importance and methods of oral hygiene | n/a |
| e9k_10 | The importance of avoiding catheters, as well as managing retention and promoting continence | n/a |
| e9k_11 | Assessing and managing problems: psychological and emotional; social and relationship; cognitive and communication; physical and functional; sensory impairment and pain; medical | n/a |
| E10 | Specialist rehabilitation | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e10k_1 | The impact of stroke on the individual, carer and family | n/a |
| e10k_2 | Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | n/a |
| e10k_3 | The implications of stroke for lifestyle, driving, work, family and acceptance in the community | n/a |
| e10k_4 | MDT assessment: the principles of stroke rehabilitation and rehabilitation referral; therapy techniques and their application | n/a |
| E10k_5 | A range of neurological treatment approaches and their applications | n/a |
| e10k_6 | Psychological and emotional problems after stroke (e.g. depression, emotionalism, anxiety, self esteem, confidence, well-being, challenging behaviour) | n/a |
| e10k_7 | Social and relationship problems after stroke (e.g. sex, lifestyle, work, housing, driving, transport, leisure, financial/ income, work/employment, children, family, support network, carers, respite, pets) | n/a |
| e10K_8 | Cognitive and communication problems after stroke (e.g. spatial awareness (neglect/inattention); visual field deficits; hemianopia; memory; attention; praxis; executive function; aphasia, dysarthria, articulatory dyspraxia) | n/a |
| e10k_9 | Physiological, physical and functional problems after stroke (e.g. rest and sleep; respiratory, mobility; balance; senses; incontinence; bladder and bowel management; swallowing; feeding, nutrition and hydration; skin integrity; sexual; motor control; ADL) | n/a |
| e10k_10 | Neurological, visual and sensory impairments and pain problems (e.g. shoulder pain, central post-stroke pain, spasticity, seizures) | n/a |
| e10k_11 | Medical problems (e.g. medication, comorbidities, complications) | n/a |
| E11 | End-of-life care | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e11k_1 | End-of-life care strategies, advanced directives, and palliative care tools in relation to stroke | 2 |
| e11k_2 | The implications of the Mental Capacity Act for stroke patients | 1 |
| e11k_3 | Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | 1 |
| e11k_4 | The range of support groups and services for those affected by stroke with palliative care needs | 2 |
| e11k_5 | The needs and aspirations of those affected by stroke (i.e. patient, carer and family) | 1 |
| e11k_6 | The assessment and management of problems, how they can be controlled and the implications for prognosis: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical | n/a |
| e11k_7 | Pharmacological and non-pharmacological interventions for end-of-life care after stroke | n/a |
| e11k_8 | The side effects of pharmacological and non-pharmacological interventions for end-of-life care after stroke | n/a |
| E12 | Seamless transfer of care | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e12k_1 | The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical; and how to involve users and carers | n/a |
| e12k_2 | Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | n/a |
| e12k_3 | The implications of stroke for lifestyle, driving, work and family | n/a |
| e12k_4 | Methods to facilitate communication with those affected by stroke | n/a |
| e12k_5 | Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport) including exit strategies | n/a |
| e12k_6 | The principles of good planning for transition between services or cessation of services and for transfer of care to the community, including the education of those affected by stroke | n/a |
| e12k_7 | All agencies that are potentially involved along the whole of the Stroke Pathway | n/a |
| e12k_8 | The principles of multi-agency working | n/a |
| E13 | Long-term care | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e13k_1 | The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical | 1 |
| e13k_2 | Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | 1 |
| e13k_3 | The needs and aspirations of those affected by stroke, particularly those related to the problems listed above, and how these needs and aspirations can be met | 1 |
| e13k_4 | The impact of stroke on the individual, carer and family | 2 |
| e13k_5 | The implications of stroke for lifestyle, driving, work and family | 2 |
| e13k_6 | Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities) | n/a |
| e13k_7 | Pharmacological and non-pharmacological interventions for secondary prevention and to facilitate recovery after stroke and their side effects | 1 |
| e13k_8 | Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self-management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport) | 2 |
| e13k_9 | Assistive technology and other therapy interventions (e.g. functional electrical stimulation, orthotics) | 1 |
| e13k_10 | Methods to facilitate communication with those affected by stroke | 1 |
| e13k_11 | Concordance: how to assess; how it is affected by individual preference; how to motivate; how to manage non-concordance | 1 |
| E14 | Review | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e14k_1 | The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical | n/a |
| e14k_2 | Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | n/a |
| e14k_3 | The needs and aspirations of those affected by stroke, particularly those related to the problems listed above, and how these needs and aspirations can be met | n/a |
| e14k_4 | Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self-management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport) | n/a |
| e14k_5 | The impact of stroke on the individual, carer and family | n/a |
| e14k_6 | The implications of stroke for lifestyle, driving, work and family | n/a |
| e14k_7 | Risk factors for further vascular events (e.g. type and aetiology of current event, lifestyle, socioeconomic, cultural, vascular, familial, genetic, concurrent medications, comorbidities) | n/a |
| e14k_8 | Pharmacological and non-pharmacological interventions for secondary prevention and how to help recovery after stroke | n/a |
| e14k_9 | Side effects of risk factor interventions and treatments to help with recovery after stroke | n/a |
| e14k_10 | Methods to help communication with those affected by stroke when conducting a review | n/a |
| e14k_11 | Concordance: how to assess; how it is affected by individual preference; how to motivate; how to manage non-concordance | n/a |
| E15 | Participation in community | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e15k_1 | The assessment and management of problems: psychological and emotional; social and relationship; cognitive and communication; physiological, physical and functional; neurological, visual and sensory impairments and pain; medical | n/a |
| e15k_2 | Advocates for stroke patients when there is a legal duty to instruct an IMCA, taking account of religious and cultural aspirations | n/a |
| e15k_3 | The needs and aspirations of those affected by stroke, particularly those related to the problems listed above, and how these needs and aspirations can be met | n/a |
| e15k_4 | Support services, organisations and resources available (e.g. health, social, voluntary, independent sector; packages of care, finance and personal budgets, self-management, respite care, equipment, adaptations, rehabilitation, psychological, educational, employment, housing, transport) | n/a |
| e15k_5 | The impact of stroke on the individual, carer and family | n/a |
| e15k_6 | The implications of stroke for lifestyle; driving; work, including voluntary and family | n/a |
| e15k_7 | Methods to help communication with those affected by stroke, including when conducting a review | n/a |
| E16 | Return to work | Level |
|---|---|---|
| Knowledge and understanding of… | ||
| e16k_1 | The effects of stroke (cognitive, physical, sensory, visual, emotional, confidence) and how it may affect a return to work and/or education | |
| e16k_2 | Assessing the effects of stroke (cognitive, physical, sensory, visual, emotional, confidence) | n/a |
| e16k_3 | Employment law, the Disability Discrimination Act, health and safety at work | n/a |
| e16k_4 | The roles of healthcare and other professionals in employment-related services (occupational health, occupational psychologist, disability employment adviser) | n/a |
| e16k_5 | The occupational therapist’s role in vocational rehabilitation | n/a |
| e16k_6 | Jobcentre Plus, its services and its effectiveness for stroke | n/a |
| e16k_7 | What is meant by “reasonable adjustment” in the workplace, how to adapt or instigate adaptation to the work environment and the employer’s responsibility | n/a |
| e16k_8 | Available helpful technology for overcoming functional and activity limitations in the workplace | n/a |
| e16k_9 | Ergonomic principles and how to overcome access issues | n/a |
| e16k_10 | Return to work education | n/a |
| e16k_11 | Health, work and well-being – the role of purposeful occupation and the detrimental effects of worklessness | n/a |
